PK Deficiency Resources and Support | Know PK Deficiency

PK Deficiency Resources
and Support

With the support of these resources, begin advocating for yourself and your life with PK deficiency

More information about PK deficiency

  • Understanding PK Deficiency

    Agios Understanding PK Deficiency Brochure

    This brochure provides an overview of PK deficiency as well as tools to help you work closely with your doctor to proactively manage your condition.

    Download for US residents only
    Download for EU and UK residents only

  • Pyruvate Kinase Deficiency Through the Decade

    PK Deficiency Through the Decade

    Understand more about PK deficiency and read summaries of key research papers published over the past decade. The list of publications and information you gather can also be used to build more proactive discussions with your doctor.

    Download for US residents only
    Download for EU and UK residents only

  • PK Deficiency Doctor Discussion Guide

    Agios PK Deficiency Doctor Discussion Guide

    Keeping track of goals, obstacles, and questions can help make sure you and your healthcare team come up with the right management plan for your PK deficiency. Download this discussion guide to help you get organized, make connections, and advocate for yourself as you prepare to meet with your doctor.

    Download the discussion guide

  • PK Deficiency Fast Facts Brochure

    Fast Facts Brochure

    Download the Fast Facts brochure for additional in-depth information about PK deficiency.
    Download the brochure

  • Understanding PK Deficiency

    Agios Understanding PK Deficiency Brochure

    This brochure provides an overview of PK deficiency as well as tools to help you work closely with your doctor to proactively manage your condition.

  • Pyruvate Kinase Deficiency Through the Decade

    PK Deficiency Through the Decade

    Understand more about PK deficiency and read summaries of key research papers published over the past decade. The list of publications and information you gather can also be used to build more proactive discussions with your doctor.

  • PK Deficiency Doctor Discussion Guide

    Agios PK Deficiency Doctor Discussion Guide

    Keeping track of goals, obstacles, and questions can help make sure you and your healthcare team come up with the right management plan for your PK deficiency. Download this discussion guide to help you get organized, make connections, and advocate for yourself as you prepare to meet with your doctor.

  • PK Deficiency Fast Facts Brochure

    Fast Facts Brochure

    Download the Fast Facts brochure for additional in-depth information about PK deficiency.

How we manage patients with pyruvate kinase deficiency by Rachael F. Grace, D. Mark
This 2019 article, written by experts in PK deficiency, discusses the management and monitoring of people with PK deficiency.
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Online PK Deficiency Support

The communities below can offer more support from others with rare diseases.

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