PK Deficiency Resources and Support | Know PK Deficiency
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PK Deficiency Resources
and Support

With the support of these resources, begin advocating for yourself

ABOUT PK DEFICIENCY

  • Understanding PK Deficiency

    Agios Understanding PK Deficiency Brochure

    This brochure provides an overview of PK deficiency as well as tools to help you work closely with your doctor to proactively manage your condition.

    Download for US residents only
    Download for EU and UK residents only

  • Information for Caregivers

    Agios Information for Caregivers Brochure

    If you are a parent or caregiver of someone with PK deficiency, this brochure can help you understand the condition and the impact living with it can have on someone's life.
    DOWNLOAD THE BROCHURE

  • PK Deficiency Doctor Discussion Guide

    Agios PK Deficiency Doctor Discussion Guide

    Keeping track of goals, obstacles, and questions can help make sure you and your healthcare team come up with the right management plan for your PK deficiency. Download this discussion guide to help you get organized, make connections, and advocate for yourself as you prepare to meet with your doctor.

    Download the discussion guide

  • Quick Reference Guide

    Agios Living with PK Deficiency: A Quick Reference Guide

    This guide can be used as a reference for school staff and other adults in your loved one's life to help them understand more about PK deficiency.
    DOWNLOAD THE GUIDE

  • Monitoring Guide

    Monitoring Guide

    This guide can help keep track of the recommended tests and follow-up assessments needed for people with PK deficiency so you and your doctor can identify health trends early on.
    DOWNLOAD THE GUIDE

  • PK Deficiency Fast Facts Brochure

    Fast Facts Brochure

    Download the Fast Facts brochure for additional in-depth information about PK deficiency.
    DOWNLOAD THE BROCHURE

  • Find a PK Deficiency Specialist

    Agios Find a PK Deficiency Specialist

    Download a list of US-based hematologists with experience treating PK deficiency.
    DOWNLOAD THE LIST

  • Understanding PK Deficiency

    Agios Understanding PK Deficiency Brochure

    This brochure provides an overview of PK deficiency as well as tools to help you work closely with your doctor to proactively manage your condition.

  • Information for Caregivers

    Agios Information for Caregivers Brochure

    If you are a parent or caregiver of someone with PK deficiency, this brochure can help you understand the condition and the impact living with it can have on someone's life.

  • PK Deficiency Doctor Discussion Guide

    Agios PK Deficiency Doctor Discussion Guide

    Keeping track of goals, obstacles, and questions can help make sure you and your healthcare team come up with the right management plan for your PK deficiency. Download this discussion guide to help you get organized, make connections, and advocate for yourself as you prepare to meet with your doctor.

  • Quick Reference Guide

    Agios Living with PK Deficiency: A Quick Reference Guide

    This guide can be used as a reference for school staff and other adults in your loved one's life to help them understand more about PK deficiency.

  • Monitoring Guide

    Monitoring Guide

    This guide can help keep track of the recommended tests and follow-up assessments needed for people with PK deficiency so you and your doctor can identify health trends early on.

  • PK Deficiency Fast Facts Brochure

    Fast Facts Brochure

    Download the Fast Facts brochure for additional in-depth information about PK deficiency.

    Download the report in your preferred language:
    English | French | German | Italian | Spanish

  • Find a PK Deficiency Specialist

    Agios Find a PK Deficiency Specialist

    Download a list of US-based hematologists with experience treating PK deficiency.

ABOUT PK DEFICIENCY

ONLINE SUPPORT

The communities below can offer more support from others with rare diseases.

ADDITIONAL RESOURCES

While these materials were not created for people with PK deficiency, they contain useful information to anyone living with a chronic condition.

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This form is for US residents only. By completing and submitting this form, you agree to allow Agios and its agents to collect the information provided and to contact you regarding its PK deficiency program and related disease information. Agios will not sell or otherwise share the information you provide other than with other companies or organizations acting as our agent to administer this website or to assist in providing the information you have requested.