Patient Support Services
myAgios is a patient support program for people living with PK deficiency and their caregivers
Our dedicated Patient Support Managers are available to Offer:
Tailored support
Everyone’s experience with PK deficiency is different. We will listen to understand your specific needs and interests, and work with you over time to deliver customized education and support.
Educational resources
Whether you’re newly diagnosed or you’ve been living with PK deficiency for a while, we will share resources that can help you or your family better understand the disease. This will help you communicate with your healthcare team.
Community connections
Living with a rare disease can mean never having met someone else with the same condition. We can provide opportunities to connect with other patients and caregivers to allow you to share your experiences with PK deficiency.
Enroll today to be connected to your dedicated Patient Support Manager. Call 1-800-951-3889, Monday through Friday, 8 AM to 6 PM ET.
For patients in the United States only. This program cannot offer medical or treatment-related advice. For these types of questions, contact your healthcare professional.