myAgios | Know PK Deficiency
See data on the long-term impact of PK deficiency

Patient Support Services

myAgios is a patient support program for people living with PK deficiency and their caregivers

Our dedicated Patient Support Managers are available to Offer:

Tailored support

Everyone’s experience with PK deficiency is different. We will listen to understand your specific needs and interests, and work with you over time to deliver customized education and support.

Educational resources

Whether you’re newly diagnosed or you’ve been living with PK deficiency for a while, we will share resources that can help you or your family better understand the disease. This will help you communicate with your healthcare team.

Community connections

Living with a rare disease can mean never having met someone else with the same condition. We can provide opportunities to connect with other patients and caregivers to allow you to share your experiences with PK deficiency.

Enroll today to be connected to your dedicated Patient Support Manager. Call 1-800-951-3889, Monday through Friday, 8 AM to 6 PM ET.

For patients in the United States only. This program cannot offer medical or treatment-related advice. For these types of questions, contact your healthcare professional.

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This form is for US residents only. By completing and submitting this form, you agree to allow Agios and its agents to collect the information provided and to contact you regarding its PK deficiency program and related disease information. Agios will not sell or otherwise share the information you provide other than with other companies or organizations acting as our agent to administer this website or to assist in providing the information you have requested.