PK deficiency resources and support programs| For HCPs

PK DEFICIENCY RESOURCES

Resources

  • Understanding PK Deficiency

    Agios Understanding PK Deficiency Brochure

    This brochure provides an overview of PK deficiency as well as tools to help you work closely with your doctor to proactively manage your condition.

    Download for US residents only
    Download for EU and UK residents only

  • Information for Caregivers

    Agios Information for Caregivers Brochure

    If you are a parent or caregiver of someone with PK deficiency, this brochure can help you understand the condition and the impact living with it can have on someone's life.
    DOWNLOAD THE BROCHURE

  • PK Deficiency Doctor Discussion Guide

    Agios PK Deficiency Doctor Discussion Guide

    Keeping track of goals, obstacles, and questions can help make sure you and your healthcare team come up with the right management plan for your PK deficiency. Download this discussion guide to help you get organized, make connections, and advocate for yourself as you prepare to meet with your doctor.

    Download the discussion guide

  • Quick Reference Guide

    Agios Living with PK Deficiency: Quick Reference Guide

    This guide can be used as a reference for school staff and other adults in your loved one's life to help them understand more about PK deficiency.
    DOWNLOAD THE GUIDE

  • Monitoring Guide

    Monitoring Guide

    This guide can help keep track of the recommended tests and follow-up assessments needed for people with PK deficiency so you and your doctor can identify health trends early on.
    DOWNLOAD THE GUIDE

  • PK Deficiency Fast Facts Brochure

    Fast Facts Brochure

    Download the Fast Facts brochure for additional in-depth information about PK deficiency.
    DOWNLOAD THE BROCHURE

  • Find a PK Deficiency Specialist

    Agios Find a PK Deficiency Specialist

    Download a list of US-based hematologists with experience treating PK deficiency.
    DOWNLOAD THE LIST

  • MyPKD App

    YouTube Channel

    Watch videos from PK deficiency experts

  • Monitoring Flashcard

    Monitoring Flashcard

    Use our monitoring flashcard to help track your patients' disease progression over time

Testing

Get more information about the Anemia ID® genetic testing and counseling program.

For your patients

Explore these tools and share with your patients to help them navigate their PK deficiency.

  • Understanding PK Deficiency

    Agios Understanding PK Deficiency Brochure

    This brochure provides an overview of PK deficiency as well as tools to help you work closely with your doctor to proactively manage your condition.

    Download for US residents only
    Download for EU and UK residents only

  • Information for Caregivers

    Agios Information for Caregivers Brochure

    If you are a parent or caregiver of someone with PK deficiency, this brochure can help you understand the condition and the impact living with it can have on someone's life.
    DOWNLOAD THE BROCHURE

  • PK Deficiency Doctor Discussion Guide

    Agios PK Deficiency Doctor Discussion Guide

    Keeping track of goals, obstacles, and questions can help make sure you and your healthcare team come up with the right management plan for your PK deficiency. Download this discussion guide to help you get organized, make connections, and advocate for yourself as you prepare to meet with your doctor.

    Download the discussion guide

  • Quick Reference Guide

    Agios Living with PK Deficiency: Quick Reference Guide

    This guide can be used as a reference for school staff and other adults in your loved one's life to help them understand more about PK deficiency.
    DOWNLOAD THE GUIDE

  • Monitoring Guide

    Monitoring Guide

    This guide can help keep track of the recommended tests and follow-up assessments needed for people with PK deficiency so you and your doctor can identify health trends early on.
    DOWNLOAD THE GUIDE

  • PK Deficiency Fast Facts Brochure

    Fast Facts Brochure

    Download the Fast Facts brochure for additional in-depth information about PK deficiency.
    DOWNLOAD THE BROCHURE

  • Find a PK Deficiency Specialist

    Agios Find a PK Deficiency Specialist

    Download a list of US-based hematologists with experience treating PK deficiency.
    DOWNLOAD THE LIST

  • MyPKD App

    MyPKD App

    The MyPKD app allows patients to track daily symptoms, save reports, and view and share trends over time.

  • Know PK Deficiency Patient Brochure

    Know PK Deficiency Patient Brochure

    Give patients access to more information to learn about their symptoms, complications, and daily life with PK deficiency.

Publications on PK Deficiency

PK Deficiency-General

Transfusion Therapy and Iron Overload

Want to know more about PK deficiency?

Want to know more about PK deficiency?

Anemia ID® is only available to residents of the United States.

All testing provided to patients through Anemia ID is paid for by Agios Pharmaceuticals. While Agios provides financial support for this program, all tests and services are performed by Revvity Omics or InformedDNA. Agios receives contact information for healthcare professionals who submit tests under this program and limited de-identified aggregate data.

Anemia ID is sponsored by Agios in partnership with Revvity Omics. Other laboratories may also offer genetic testing.

All genetic counseling services provided to patients through Anemia ID are paid for by Agios Pharmaceuticals. While Agios provides financial support for this program, all genetic counseling services are performed by InformedDNA. Agios receives contact information for healthcare professionals who request genetic counseling for their patients under this program and limited de-identified data.

Get connected with an Agios Hemolytic Anemia Specialist. .